We have hope as an anchor for Lesch-Nyhan Families to keep them safe and secure.
Love Never Sinks is an organization founded to help children and families living each and every day with Lesch-Nyhan Syndrome. Our purpose is to help......We assist families and parents first with love and compassion, we will come to visit you anywhere in the United States. We aim to empower parents to be advocates for their children and to assist parents with finding appropriate resources.
 We will fund the shipment of supplies and equipment from one family to another. 
We will also be creating awareness in the medical community by distributing pamphlets and information to medical peronnel throughout the country.

Please check out our NEWS, PHOTOS and FAMILY CENTER tabs at the top of the page for updates and ideas that we came up with at the Meet and Greet Conference in Clarksville IA Aug 22-25, 2013! 

It was a pleasure to have Dr. Nyhan join us.

We had a great time and we are planning next year's conference already!


We would love to hear from you and we welcome you to register, but it is not necessary, you can navigate anywhere on the webpage without registering!

 

If you are interested in supporting Love Never Sinks financially please click on Webstore tab above to donate via credit card.

checks can be made out to 

love never sinks 

962 first st batavia il 60510

 

 

 

Contact Information

Michelle Lucas at mllucas72@gmail.com 

319-961-0398

Peggy Young at pegn12@gmail.com 

630-292-3057 

Amy Laws at alaws@att.net



Love Never Sinks 2nd Annual Conference
JUNE 20-21, 2014 
Clarksville IA
Please join us for our second annual conference to support Lesch-Nyhan families! See the Get Involved/Events Tab for a schedule of events for this year's conference. 
This year we plan to have a great group of families gathered to share, to rekindle friendships from last year and to grow our community! Saturday, June 21 will be a special day for families, LNS kids and even the larger community! We will be hosting a field day and 5k event with games and grilling! The 5k is designed for runners, walkers and rollers alike! 

Please let us know if you are interested in attending. There is no registration fee for the conference. The 5k will be the only fundraiser. See the WEBSTORE  for details regarding registration for the 5k. You will also find a registration form for the 5k on the Get Involved/Events Tab

Love Never Sinks for Lesch-Nyhan Syndrome 5K Run/Walk/ROLL!!! 
OCTOBER 19 & 20, 2013
 
The 5k events in  IL and OH were a smashing success! We had over 70 participants runners, walkers and rollers alike! There were a total of four LNS families as well as one other participant in a wheelchair, love it, love it! Not to mention strollers, dogs and a few who courageously rode their bikes or managed just 1k!
 
Thank you to all of our sponsors, particpants and donors alike! We were able to raise over $2000.00 thanks you your efforts  over that one weekend!
 
The funds will be used to connect and assist event more LNS families and will go a long way in supporting next years conference! 
 
Check out the Central Ohio chapter at the website below:

We will be an anchor for you in times of rough seas and a lifeline when you feel all alone with Lesch-Nyhan.